It took me years to get over this first hurdle, as I used to be so brainwashed. If others can get beyond this hurdle too, I believe that we (as CFS patients) can get to the funding faster.
Chronic Fatigue Immune Deficiency Syndrome (CFIDS/CFS) is
not a disease. CFS is a syndrome, as its name suggests.
Acquired Immune Deficiency Syndrome (AIDS) is
not a disease. AIDS is a syndrome, as its name suggests.
Neither CFS nor AIDS are diseases. A syndrome is a syndrome.
Myalgic encephalomyelitis (ME) is a disease, just like MS or malaria.
CFS and ME are not the same (one a syndrome, the other a disease). CFS/ME terminology is not interchangeable, and is not accurate.
CFS (syndrome) patients like to align themselves with ME (disease) patients because it helps give our syndrome the dignity and respect that it currently lacks (i.e., due to the silly, belittling name our government labeled it). I coined this phenomenon 'disease envy.' Disease envy's advent:
http://cfsstraighttalk.blogspot.com/2005_07_01_archive.htmlI don't entirely disagree that CFS patients should do this. CFS patients have to understand, however, that we are stealing the name of a legitimate disease, ME. This is the reason why ME patients typically don't like to be lumped in with the CFS patients, because CFS patients' dilute the meaning of ME's very well-defined disease. I don't blame them. If I were a ME patient, I wouldn't want a CFS patient lumped in with me either.
If you are a CFS patient and your doctor has not diagnosed you with ME, then you cannot arbitrarily decide that you have ME (e.g., I am a CFS patient, and I am far sicker than most ME patients that I know, so what difference does it make?). Although both illnesses have the same gravity, they are not the same diagnosis. There is currently a massive initiative to get CFS (syndrome) patients properly diagnosed as ME (disease) patients. Simply look-up: "ME ICC vs CFS Fukuda." You have to acknowledge however that not all CFS patients will quality for a ME diagnosis. I repeat CFS/ME terminology is not interchangeable, and is not accurate.
I see the big picture as to why CFS and ME terminology should not be severed (at least until the initiative is complete), as there is a high correlation and probable same causal pathogen shared between the two maladies. Allied government (political) simply named us two different things so we don't roll-up into the same category (i.e., by ICD-coding) on a world-wide level, which would garner more attention then require their public response.
I always hear CFS patients saying "oh,
they're so stupid.
They don't understand my illness." The answer is "no,
they are not." The people (political) who set it up this way are
very, very smart. They mindfully constructed the paradigms this way. It utterly horrifies me that we pay these peoples' salaries (political) to mask the very problem that they created. Government works for us (not vice versa), right? Allied government sold-out global public health for the sake of profit.
When you enter a CFS forum/chat room, haven't you noted the prevalence of where other members live (i.e., USA, UK, Canada, Australia)? Have you ever asked yourself: Why? Haven't you noticed the Gulf War Syndrome research that percolates through? Don't ignore these signs, discarding them as irrelevant (e.g., because you're not a veteran), ask yourself: why is a GWS patient in the same room as me? How are we the same? If you came to the internet for answers, to discover the truth, and to gain knowledge about the root cause of your illness, it is all out here. You just need to keep asking questions.
AIDS and CFS (both syndromes) are 100% political paradigms.
An ailing, immunosuppressed CFS patient could die of complications associated with their severe immune deficiency and not have been funded a dime in research or services. This happens every day in USA, UK, Canada, and Australia (being that they are NATO allies there are plenty of logical reasons for this geography).
Alternatively, anyone in Africa who presents to a doctor with symptoms (of basically anything) gets diagnosed with AIDS; HIV+ is not even a prerequisite. So an African could die of TB or a mosquito bite and their death would be ICD-coded as AIDS. AIDS (political paradigm) will get funded another billion dollars of our taxpayer money.
Our tax money will then get distributed to AIDS research so that the government-defined 'undesirable' population can then use the money to buy expensive, extremely toxic pharmaceuticals; Literally, drugging the 'undesirables' to death for-profit, under the false pretense that the government is helping them. It happens every day in Africa, even though HIV wasn't even present.
HIV is not the cause of AIDS because AIDS is not a disease.
This is how ridiculous these sham paradigms are: A patient who is symptomatically diagnosed as CFS or ME in the US/UK/Canada/Aussie would be diagnosed AIDS, if they moved to Africa.
These sham paradigms are pure lunacy.
SCENARIO:
1) If you had the authority to allocate billions of dollars in taxpayer money to scientific research, where
global public health was your
#1 priority, would you fund perfectly healthy HIV+ people (most of whom have never been sick a day in their life) or would you fund research for sick, ailing, immunodeficient CFS patients?
2) If you had the authority to allocate billions of dollars in taxpayer money, where acquisition of
untapped oil/diamond reserves and a significantly reduced world population was your #
1 political agenda, would you give it to perfectly healthy HIV+ people (most of whom have never been sick a day in their life, so that they can drug themselves to death) or would you fund research for sick, ailing, immunodeficient CFS patients?
The answer remains crystal clear to me.
Neither CFS nor AIDS are even diseases. They are politically-defined syndromes. CFS and AIDS patients are not dealing with science. They are dealing with politics, and I demand a revolution.
PLEASE WRITE TO CONGRESS: If CFS and/or ME patients truly wanted billions of dollars of funding to be allocated to studying their illness, all they need to do is demand of their government officials’ that the medical establishment (e.g., NIH/NIAID) conduct a “Re-Appraisal of AIDS.”
If you are moved and disturbed by my medical plight, please write a letter to your representative(s) demanding that the medical establishment conduct a "Re-Appraisal of AIDS."
U.S. reps can be found here:
http://www.senate.gov/general/contact_information/senators_cfm.cfm http://www.house.gov/representatives/http://www.whitehouse.gov/contact/- - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - -
Good night. God Bless. And God Bless America.
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Message to François 'Qt' (re: May 9, 2011):Tell your mum, the family, the hockey team, your boyz, the radio broadcast, the abutterS, the habit-wearing women, the emt's, all the girls, the wannabe forgetful people, the boathouse agents, my dopplinger, and all the other code talkers you had talk to me/us along the way that I say: 'BRAVO!' We always agreed that we were both equally as smart, one just a little bit more. Did you ever consider (even for a nanosecond) that it was me? If you all weren't so selfish, misguided and pitiable, you all would have seen that you were outperformed right from the start. I had been anticipating your arrival (for a couple O' years actually), and you-had-me-at-hello kisses. Self-proclaimed 'nice guy's are never nice, and it's really unfortunate that you forgot to log-out of your account when you left one day --> a moral moment that I had to overcome. bonito reloj. equipos de fantasía. 拉霍亚. There were two other MAJOR mistakes.It only seemed fair, since everyone was acting, that I join in too. 12 Parishes of Dot Dot Dot. Quebec Nordiques. I pray that my 'angels' will always continue to keep watch over you (and your 'friend's). Tix-daddy: can you 'set-up' XLVI for me too? Moooondoggggies. I seriously hate typos (e.g., celeabrates, Roslen) too. Of all people, you should've known that 'playing dumb' is my best role.I am sure that you'll agree that in me NOT taking that 'aspirin' (then what transpired) makes us both witnesses of a pure miracle**. Now that I know Teams 4 and 5, I wonder about 1-3. <3 Center: a gift from _ _ _. Please tell JackEE that I miss seeing him, and N.O'T that I say: 'Kiss my a$s.' I pray that the glaucoma has not worsened w/o proper treatment.Has anyone ever told you that you blink when you lie (i.e., tell me that you love me just one more time)? 讓你的敵人更緊密. How many times do I have to tell you that I don't care what other people think of me, as there is only one Man who will ever judge me. You certainly made my life entertaining, and I have no doubt that you will always remember your first (as your last). I still love Glee, and the blue mug best. ;) For the record, I W.I.L.L. NEVER. And, to answer the question, 'man' can only dream of being as strong as God made this 'woman!' Knighty, night, nite... it's dreamtime. guffaw.** Jules, Pulp Fiction: "There's a passage I got memorized. Ezekiel 25:17. "The path of the righteous man is beset on all sides by the inequities of the selfish and the tyranny of evil men. Blessed is he who, in the name of charity and good will, shepherds the weak through the valley of the darkness, for he is truly his brother's keeper and the finder of lost children. And I will strike down upon thee with great vengeance and furious anger those who attempt to poison and destroy My brothers. And you will know I am the Lord when I lay My vengeance upon you.""Evil vs. good; attempt to poison and destroy ... sounds right to me. Remember your church mouse advice? Those are my parting words.- - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - -
"You have heard that it was said: 'You shall love your neighbor and hate your enemy.' But I tell you: 'Love your enemies and pray for those who persecute you.'" Matthew 5:43-44
