Wednesday, October 04, 2006

DEAR CONGRESSMAN (SAMPLE LETTER) + SIMPLE & FREE ADVOCACY IDEAS

Permission to repost. Edit as you see fit.
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Dear Congressman xxxxx,

As your constituent, I am outraged with the lack of funding for Chronic Fatigue Syndrome (CFS) and Myalgic Encephalomyelitis (ME), often erroneously referred to as "CFS/ME." 

CFS and ME are acquired multi-system illnesses adversely affecting the heart, brain, immune system, nervous and circulatory systems --  including post-exertional malaise and neurological/cognitive manifestations. 

End Stage CFS&ME is often referred to as "NON HIV AIDS." 

Suspiciously, "NON HIV AIDS" cases started presenting in scores in 1992 -- in tandem with the *very mysterious* "Gulf War Syndrome."

Research to help people suffering debilitating illness from NON HIV AIDS, who are often homebound and bedbound, received a measly $6 Million in federal funding last year, while perfectly healthy HIV+ people received $3.1 Billion.

NIH-Sponsored Funding

HIV/AIDS = $3,059,000,000
CFS/ME    =        $6,000,000

Source: http://report.nih.gov/rcdc/categories/

I am a citizen and taxpayer. I DEMAND LIBERTY, JUSTICE & EQUALITY FOR ALL.  PLEASE HALT ALL HIV FUNDING, and re-allocate monies to Gulf War research.

Sincerely,
xxxx

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U.S. Gov't reps:

http://senate.gov/general/contact_information/senators_cfm.cfm/
http://house.gov/house/MemberWWW.shtml
http://whitehouse.gov/contact/

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FREE & SIMPLE
ADVOCACY IDEAS
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In terms of simple advocacy, we need to get-off-the-internet, start thinking OUTWARDS, and get the message to the masses (not continuously repeated amongst ourselves).

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IDEA # 1
BULK ORDER

FREE BUSINESS CARDS
============================== 
 
Order bulk business cards, and leave them around in your travels.

The areas I've focused on are: coffee shops, libraries, grocery stores, doctors offices, therapists offices, colleges, cabs, metro trains, STD testing clinics, etc.

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FRONT OF CARD (EXAMPLE):
I am outraged by the lack of research and public attention towards Chronic Fatigue Syndrome (CFS) and Myalgic Encephalomyelitis (ME)."
CFS&ME are acquired multi-system illnesses adversely affecting the heart, brain, immune system, nervous system, circulatory systems and muscles, including post-exertional malaise and neurological/cognitive manifestations.  End Stage CFS cases are often referred to as "NON HIV AIDS."

BACK OF CARD (EXAMPLE):
Research to help people suffering debilitating illness from NON HIV AIDS, who are often homebound and bedbound, is non-existent.  Just from what we know today, in terms of the immune dysfunction and human suffering, CFS&ME is just as serious a public health problem as AIDS.  Visit www.mecfsforums.com to learn more about this hideous acquired illness."
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* Be sure that your anonymous business card has a "CALL TO ACTION" at the end ("please visit..", "please write..." etc.).

Start leaving them EVERYWHERE!
 
 
Especially where people like us would have shown-up in our pre-diagnosed stages (e.g., I was in-and-out of STD clinics). 
 
 
If you not well enough to be out, give a bundle to your family and friends to do it. 
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IDEA # 2
*ADD A BLURB TO YOUR
OUTGOING EMAILS.*
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1) add a blurb about CFS&ME to the "signature line" of all your outgoing emails.

or

2) set your email box to have a vacation "auto-response" w/ an educational blurb re: CFS&ME.

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{EXAMPLE}

"I am very concerned with the lack of public attention towards Chronic Fatigue Syndrome (CFS) and Myalgic Encephalomyelitis (ME), often referred to as "CFS&ME."

CFS & ME are acquired multi-system illnesses adversely affecting the heart, brain, immune system, nervous system, circulatory systems and muscles, including post-exertional malaise and neurological/cognitive manifestations.  End Stage CFS cases are often referred to as "NON HIV AIDS."

Please visit www.mecfsforums.com to learn more about this hideous acquired illness, and to get more involved."

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IDEA # 3
* CLOG-THE-PHONE-LINES-OF-THE-

PUBLIC-HEALTH-DEPARTMENT-DAY.*
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Pick a day.  Have all CFSers' simultaneously call their public health departments all day.  Across the world.

These people work for us, not vice versa.  We pay their salaries.

You can:

- do it from home
- do it from bed
- set your phone to auto-redial
- call from your cell and land lines

If you reach a human just start asking questions:

 Why isn't CFS&ME reportable illnesses overseen by our public health department?
 Why are CFS&ME (i.e., the same exact disorder) suspiciously categorized as two separate illnesses on a worldwide level (i.e., by ICD codes)?
 What new pathogens are you aware of that I should be testing for?
 Can you help me get systemically diagnosed by conducting advanced microbe testing on my blood?

REPEAT.
REPEAT.
REPEAT.

We are not dealing with nice, logical, rationale people.  It was created illogical on purpose. Squeaky wheels always get oiled. 
 
WE NEED TO ACT-UP!


{I got my blood shipped to the CDC-Atlanta (twice) for advanced microbe testing by liaising with my State Health Department.}


If you want now, what needs to get done, watch this award-winning documentary "HOW TO SURVIVE A PLAGUE" -->


QUOTE FROM MY FEDERAL TESTIMONY:
 
 "after opening my private foundation, I got the White House to open an investigation, Senator John Kerry to forward my case to the head of the CDC, & U.S. Global AIDS Coordinator to forward to NIH/NIAID.

Amongst other things, my blood has been to the CDC-Atlanta (twice) and to the Washington-DC pathology labs. I have sat on conference call with the American Red Cross. Facilitated by the United Nations, I have been out of the USA (twice now) to meet with a Nobelist...." 

MY FEDERAL TESTIMONY --> NON HIV AIDS 
Washington, DC via conference ~ 
5-minutes (starts @ Minute-0):
www.youtube.com/watch?v=ubjGm5dILpY&list=PL600CB038194B4593&index=11&feature=plpp_video/


★★ BUCK-THE-SYSTEM –> STOP FUELING IT! ★★
★★  REVOLT, RESISTANCE, & REVOLUTION ★★
★★  ARE HISTORY'S ONLY PROVEN SOLUTIONS. ★★

"Whether we recognize it or not as Americans, we are headed towards Marxism... The problem is that the federal
government is out-of-control...
...It's time to ride boys, we need 

a 1,000 Paul Revere's."

3-minute movie trailer: https://youtube.com/watch?v=DO48Y1lz3rA
http://beholdapalehorse.tv/trailer.html

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